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These are the #RareDiseases we are making visible this week.

Learn a little more about the pathologies that commemorate their world or international days this week.

C.D. Leganés has set as one of its objectives for the current season 2023/24 to give visibility to people suffering from rare diseases, as well as to raise awareness in society about the problems and needs of this group and their families and closest environment.

The club has dedicated its third kit to this cause, with the colors associated with rare diseases, with a percentage of sales going to the Spanish Federation for Rare Diseases (FEDER). In addition, the captain's armband for this campaign also sports the colors that appear in the logo of World Rare Disease Day, which is celebrated every 29 February.

In this last week of May, the following rare diseases are commemorated:

May 27: Type II Collagenopathies Day. Mutations in the COL2A1 gene are responsible for a series of abnormalities known as Type II Collagenopathies. Collagen is the “cement of the body” and Type II collagen adds structure and strength to the connective tissues that support muscles, joints, organs and skin, throughout the body.


May 28: International Treacher Collins Syndrome Day. Treacher Collins syndrome affects the way the bones of the face develop before a baby is born. This can impact many things, but children with the condition usually have normal intelligence and life expectancy.


May 30: Prader Willi Syndrome Day. It is a rare genetic disorder. It causes decreased muscle strength, low levels of sex hormones and a constant feeling of hunger. The part of the brain that controls satiety or hunger does not work as it should in people with this syndrome. They eat excessively, causing obesity.


June 1: World Congenital Adrenal Hyperplasia Day. Congenital adrenal hyperplasia (CAH) refers to a group of genetic disorders that affect the adrenal glands, a pair of walnut-sized organs located above the kidneys.


June 1: Lymphagioleiomyomatosis Day. A rare multiple cystic lung disease characterized by progressive cystic lung destruction and lymphatic disturbances, often associated with renal angiomyolipomas (AMLs).


June 2: World Myasthenia Gravis Day. Myasthenia gravis causes weakness of voluntary muscles. These muscles are the ones under your control. Autonomic muscles, such as the heart and gastrointestinal tract, are usually not affected. The muscle weakness of myasthenia gravis worsens with activity and improves with rest.